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Call key data
1+ Million Genomes: sustainability and uptake
Funding Program
Digital Europe
Call number
DIGITAL-2024-CLOUD-DATA-AI-06-GENOME
deadlines
Opening
29.02.2024
Deadline
29.05.2024 17:00
Funding rate
100 %
Call budget
€ 2,000,000.00
Estimated EU contribution per project
€ 2,000,000.00
Link to the call
Link to the submission
Call content
short description
The objective of this action is to enable sustainable operation and uptake of the European Genomic Data Infrastructure (GDI) that implements the EU Member States’ initiative 1+ Million Genomes (1+MG).
Call objectives
As endorsed by Member States’ representatives in the 1+MG Group (special group of national representatives in the 1+MG initiative), establishing a European Digital Infrastructure Consortium (EDIC) to operate and maintain the European GDI is the preferred option for the sustainability of the initiative and data infrastructure. This action will support the preparatory work for the creation and for the operation of an EDIC, facilitate strategic orientation of the 1+MG initiative and support expert work to enable the uptake of genomics for healthcare and public health purposes, as well as the data aspects of the 1+MG Framework.
The action will support Member States’ work enabling the creation and operation of an EDIC on genomics in line with the Decision (EU) 2022/2481 of the European Parliament and of the Council of 14 December 2022 establishing the Digital Decade Policy Programme 2030. The future EDIC will play a focal role in facilitating the uptake of genomics and implementation of the European genomic data infrastructure not only for research, but also in the contexts of healthcare delivery and public health policy. It will also be essential in the effort to ensure public trust in genomics, enable broad uptake by healthcare professionals, e.g. by enhancing digital skills and auxiliary data services, and raise awareness among policymakers regarding the benefits of application and integration of genomics in healthcare systems’ services and in public health policy measures. The action will also support the alignment of the future EDIC with the European Health Data Space (EHDS). Finally, the EDIC is expected to be involved in the implementation of data-related guidelines constituting the 1+MG Framework, in particular regarding (meta)data standards and data quality assurance.
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Expected effects and impacts
- Documentation agreed by Member States about ethical, legal, privacy-related and economic aspects of 1+MG implementation necessary to operate an EDIC on genomics.
- Sustainability roadmap for the EDIC.
- Reports on gaps, challenges, needs and the necessary actions to implement genomics in healthcare and public health.
- Data on clinical utility and economic aspects of genomics (costs/savings) for economic models and policymaking.
- Frameworks for 1+MG data/metadata standards’ maintenance and data quality assurance.
Expected results
The action is expected to:
- support workshops, working groups, meetings with private and public stakeholders, necessary for creating the EDIC for the 1+MG initiative and supporting its implementation roadmap,
- make analysis and proposals on the necessary legal and ethical enablers and arrangements specific to this EDIC,
- identify and analyse gaps, challenges and unmet needs, and propose the respective actions for the EDIC feeding into the EDIC sustainability roadmap including legal, ethical, organisational and economic aspects, and covering implementation for research, healthcare and public health purposes,
- explore the implications of the EHDS Regulation and operationalise the EDIC’s participation in the HealthData@EU infrastructure,
- establish the evidence base for the health impact and economic implications of genomics (costs/benefits) to inform the relevant health economic models and health policy decisions,
- explore models for public-private partnerships for genomics in healthcare,
- maintain and promote the use of the Maturity Level Model (MLM) developed by the “Beyond 1 Million Genomes” (B1MG) project to ensure coordinated alignment across healthcare systems towards implementation and equity in access to genomics medicine,
- design actions to promote the literacy level and education of citizens, health professionals and policy makers on genomic medicine across Europe,
- establish frameworks that are necessary to ensure that the data made available to users via 1+MG meet the agreed data standards and data quality requirements, including specific roles for the EDIC.
This action should build on / align with the outcomes of the B1MG and GDI projects and goals of the Genome of Europe project, while clearly defining its distinct scope and deliverables. In particular, the data infrastructure developed and deployed by the GDI project and the respective data governance will form the cornerstone of the future EDIC. The action should also take into account and leverage the synergies with the future European Health Data Space and the respective preparatory projects (e.g. TEHDAS, HealthData@EU pilot). Moreover, the results of other relevant past and ongoing projects under Horizon 2020, Horizon Europe, EU4Health and IMI2/IHI should be duly considered to avoid duplication of efforts.
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Eligibility Criteria
Regions / countries for funding
Moldova (Moldova), Albania (Shqipëria), Bosnia and Herzegovina (Bosna i Hercegovina / Босна и Херцеговина), Iceland (Ísland), Kosovo (Kosova/Kosovë / Косово), Liechtenstein, Montenegro (Црна Гора), North Macedonia (Северна Македонија), Norway (Norge), Serbia (Srbija/Сpбија), Türkiye, Ukraine (Україна)
eligible entities
Education and training institution, Non-Profit Organisation (NPO) / Non-Governmental Organisation (NGO), Other, Private institution, incl. private company (private for profit), Public Body (national, regional and local; incl. EGTCs), Research Institution incl. University, Small and medium-sized enterprise (SME)
Mandatory partnership
Yes
Project Partnership
Proposals must be submitted by a consortium of minimum 3 independent applicants (beneficiaries; not affiliated entities) from 3 different eligible countries OR minimum 1 European digital infrastructure consortium (EDIC) composed of at least 3 Member States.
To be eligible for funding, applicants must be:
- legal entities (public or private bodies)
- established in one of the eligible countries:
- EU Member States (including overseas countries and territories (OCTs))
- EEA countries (Norway, Iceland, Liechtenstein)
- other countries associated to the Digital Europe Programme (list of participating countries)
Specific cases:
Natural persons are NOT eligible (with the exception of self-employed persons, i.e. sole traders, where the company does not have legal personality separate from that of the natural person).
International organisations — International organisations are not eligible, unless they are International organisations of European Interest within the meaning of Article 2 of the Digital Europe Regulation (i.e. international organisations the majority of whose members are Member States or whose headquarters are in a Member State).
EU bodies — EU bodies (with the exception of the European Commission Joint Research Centre) can NOT be part of the consortium.
Entities without legal personality — Entities which do not have legal personality under their national law may exceptionally participate, provided that their representatives have the capacity to undertake legal obligations on their behalf, and offer guarantees for the protection of the EU financial interests equivalent to that offered by legal persons.
Associations and interest groupings — Entities composed of members may participate as ‘sole beneficiaries’ or ‘beneficiaries without legal personality’.
other eligibility criteria
Projects involving EU classified information must undergo security scrutiny to authorise funding and may be made subject to specific security rules (detailed in a security aspects letter (SAL) which is annexed to the Grant Agreement).
Financial support to third parties is not allowed.
Additional information
Topics
Relevance for EU Macro-Region
EUSAIR - EU Strategy for the Adriatic and Ionian Region, EUSALP - EU Strategy for the Alpine Space, EUSBSR - EU Strategy for the Baltic Sea Region, EUSDR - EU Strategy for the Danube Region
UN Sustainable Development Goals (UN-SDGs)
project duration
min. 36 months
Additional Information
Proposals must be submitted electronically via the Funding & Tenders Portal Electronic Submission System (accessible via the Topic page in the Search Funding & Tenders section. Paper submissions are NOT possible.
Proposals must be complete and contain all the requested information and all required annexes and supporting documents:
- Application Form Part A — contains administrative information about the participants (future coordinator, beneficiaries and affiliated entities) and the summarised budget for the project (to be filled in directly online)
- Application Form Part B — contains the technical description of the project (to be downloaded from the Portal Submission System, completed and then assembled and re-uploaded)
- Mandatory annexes and supporting documents (to be uploaded):
- detailed budget table/calculator: not applicable
- CVs of core project team: not applicable
- activity reports of last year: not applicable
- list of previous projects (key projects for the last 4 years) (template available in Part B): applicable
- ownership control declarations: not applicable
- other annexes
Proposals are limited to maximum 50 pages (Part B).
Call documents
Call document DIGITAL-2024-CLOUD-DATA-AI-06Call document DIGITAL-2024-CLOUD-DATA-AI-06(673kB)
Contact
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