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Health: Data ingestion capacities and data services for the European Genomic Data Infrastructure in the European Health Data Space: data tools
Funding Program
Digital Europe
Call number
DIGITAL-2026-AI-09-DS-HEALTH-TOOL
deadlines
Opening
04.11.2025
Deadline
03.03.2026 17:00
Funding rate
50%
Call budget
€ 5,000,000.00
Estimated EU contribution per project
€ 5,000,000.00
Link to the call
Link to the submission
Call content
short description
This action aims to enhance the European genomic data infrastructure by supporting the deployment of advanced tools for data curation and use and its alignment with the European Health Data Space (EHDS).
Call objectives
Data quality and volume are key success factors for health data infrastructures supported under the Digital Europe Programme, such as the one developed by the Genomic Data Infrastructure (GDI) project implementing the 1+ Million Genomes (1+MG) initiative of the Member States. The availability of thoroughly curated genomic data and related clinical and phenotypic information is a prerequisite for accelerating the move to the next level of multi-modal data modelling and deployment as well as health sector innovation in Europe. 1+MG and the projects implementing the initiative have worked and agreed on common data standards and ontologies, data quality criteria and thresholds, data inclusion policies and the necessary standard operational procedures. On that basis, data holders will need to quality-check and curate the datasets that they will be making available to 1+MG and EHDS (HealthData@EU) to ensure their interoperability and high value for users. Wide accessibility of the data and user-friendliness of the tools and services facilitating the access to data are critical success factors of the 1+MG data infrastructure. While such functionalities for research purposes have been already largely covered in the deployment project GDI, application in other use scenarios, in particular healthcare and public health policy, requires additional tools, application programming interfaces (APIs) and interfaces to address the corresponding specific user needs and requirements. The citizen perspective must be also factored in to ensure, through appropriate IT tools, full compliance with the General Data Protection Regulation (GDPR) rules regarding citizens’ rights on personal data protection. This action relates to the potential creation of a European Digital Infrastructure Consortium for genomic data (Genome EDIC) and supports the activities related to operating the 1+MG data infrastructure established with the support of Digital Europe under Work Programme 2021-2022 (GDI project), including its alignment with the requirements, technical specifications, and processes established by the EHDS Regulation to ensure a smooth functioning within the HealthData@EU infrastructure.
Data tools for the 1+MG data infrastructure should be based on common standards and as automated as possible, and should enable data quality check at source, benchmarking, annotation and enhancement on the data provider end and by the operator of the data infrastructure, as appropriate. This covers the whole process of data inclusion, integration and access provision, as well as compliance assessment, risk management and data security assurance on the side of data infrastructure. All steps and functionalities should be designed to support the needs and requirements of three main use scenarios, i.e. research (largely already covered by the GDI project), and clinical care and public health policymaking. They should follow and implement the standards and procedures agreed within the 1+ Million Genomes initiative (1+MG Framework) and be compliant with the EHDS Regulation. For example, data curation tools should facilitate the description of datasets using a metadata standard compatible with the one required for the EU Dataset Catalogue of the EHDS (Health DCAT-AP), including its data quality and utility label as defined in the project QUANTUM. Metadata should also cover information about legal conditions and enablers for sharing the respective dataset. Moreover, the action should leverage best practices and strategies for linking clinical and genomic data at individual level, within the framework of EHDS where appropriate, to maximise access to data while preserving the security and privacy of data subjects (e.g. sampling, anonymisation and pseudonymisation techniques, data gap filling). Data minimisation tools should support compliance with the respective GDPR rules. Moreover, this action covers piloting and the deployment of tools, APIs and interfaces to provide high quality data services to the users of the 1+MG data infrastructure for healthcare and public health policy purposes as well as addressing any remaining user needs in research not yet covered by other projects. For example, APIs and interfaces for data discovery, and federated analysis and modelling in a secure processing environment will enable users to find, access and integrate the data at the required level of data protection safeguards to serve their projects, clinical questions or policy development. Adequate data de-identification/synthetisation methods and support to multi-modal data discovery and analysis across the data infrastructures (e.g. linking up with the Cancer Image Europe and HealthData@EU infrastructures) should also be considered and implemented. The tools delivered and deployed should be user-friendly and clearly support high uptake of the data infrastructures and their services. Furthermore, the action is expected to establish a citizen portal for 1+MG enabling citizens to exercise their GDPR rights, such as obtaining information about their data inclusion / processing and their legal basis, manage the consent, requesting data access, rectification or erasure. All solutions deployed by the project should be compatible with the Simpl middleware platform, where appropriate, and ensure interoperability with the HealthData@EU infrastructure. Tools related to authentication should be eIDAS-compliant. While fully respecting the prerogative of participants within the 1+MG data infrastructure to determine who can access what data and under which conditions, suitable links to the AI Factories should be envisaged. The project should include a description of data access and usage arrangements.
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Expected effects and impacts
KPIs to measure outcomes and deliverables
- Number of tools, APIs and interfaces developed, tested and deployed in the GDI, covering well documented needs of users from research
- Number of tools, APIs and interfaces developed, tested and deployed in the GDI, covering well documented needs of users from healthcare
- Number of tools, APIs and interfaces developed, tested and deployed in the GDI, covering well documented needs of users from policy.
- Citizen’s portal (The KPI for the citizen’s portal should be measured every 12 months following the start of operations):
- number of page views;
- average monthly active users;
- number of registered users;
- number of citizens participating in interactive features (contact forms, requests, surveys);
- number of security breaches and technical incidents reported;
- number of security incidents solved;
- average wait time for incidents.
Additional KPIs should be proposed by applicants in the project proposal as appropriate.
Targeted stakeholders
Public and private entities such as (but not limited to): public administrations (national, regional and local level), Health Data Access Bodies, hospitals, research institutes, biobanks, research agencies, research infrastructures, European Digital Infrastructure Consortia (EDIC).
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Expected results
- Tools to perform automated data and metadata curation / inclusion / minimisation by data providers, foster data quality assurance and enable compliance checks and risk/security management developed, tested and deployed in the 1+MG data infrastructure in alignment with agreed 1+MG requirements and related standards and procedures, as well as with the legislative and technical framework of the European Health Data Space and European Digital Identity Framework.
- Tools, APIs and interfaces developed, tested and deployed in the GDI, covering well documented needs of users from research, healthcare and public health policy, in alignment with the European Health Data Space.
- Citizens’ portal, allowing at least management of GDPR rights of citizens and citizens’ engagement, to be established and operational at month 12 at the latest.
Eligibility Criteria
Regions / countries for funding
Iceland (Ísland), Liechtenstein, Norway (Norge), Switzerland (Schweiz/Suisse/Svizzera)
eligible entities
Education and training institution, Non-Profit Organisation (NPO) / Non-Governmental Organisation (NGO), Other, Private institution, incl. private company (private for profit), Public Body (national, regional and local; incl. EGTCs), Research Institution incl. University, Small and medium-sized enterprise (SME)
Mandatory partnership
Yes
Project Partnership
Proposals must be submitted by minimum 5 independent applicants (beneficiaries; not affiliated entities) from 5 different eligible countries.
In order to be eligible, the applicants (beneficiaries and affiliated entities) must:
- be legal entities (public or private bodies)
- be established in one of the eligible countries, i.e.:
- EU Member States (including overseas countries and territories (OCTs))
- non-EU countries (except for topics with restrictions; see below):
- listed EEA countries and countries associated to the Digital Europe Programme (list of participating countries)
Please note however that some topics are subject to restrictions due to security reasons. For this topic, only the following countries are eligible: EU Member States, EEA countries and Switzerland. Entities must not be directly or indirectly controlled from a country that is not an eligible country unless the granting authority agrees to allow for exceptional participation on the basis of a guarantee (ownership control restriction).
Financial support to third parties is not allowed.
Due to restrictions due to security, the proposals for this topic must relate to activities taking place in the eligible countries.
other eligibility criteria
Specific cases and definitions
Natural persons are NOT eligible (with the exception of selfemployed persons, i.e. sole traders, where the company does not have legal personality separate from that of the natural person).
International organisations are NOT eligible, unless they are International organisations of European Interest within the meaning of Article 2 of the Digital Europe Regulation (i.e. international organisations the majority of whose members are Member States or whose headquarters are in a Member State).
Entities which do not have legal personality under their national law may exceptionally participate, provided that their representatives have the capacity to undertake legal obligations on their behalf, and offer guarantees for the protection of the EU financial interests equivalent to that offered by legal persons.
EU bodies (with the exception of the European Commission Joint Research Centre) can NOT be part of the consortium.
Entities composed of members may participate as ‘sole beneficiaries’ or ‘beneficiaries without legal personality’. Please note thatif the action will be implemented by the members, they should also participate (either as beneficiaries or as affiliated entities, otherwise their costs will NOT be eligible).
Beneficiaries from countries with ongoing negotiations for participating in the programme (see list of participating countries above) may participate in the call and can sign grants if the negotiations are concluded before grant signature and if the association covers the call (i.e. is retroactive and covers both the part of the programme and the year when the call was launched).
Special rules apply for entities subject to EU restrictive measures under Article 29 of the Treaty on the European Union (TEU) and Article 215 of the Treaty on the Functioning of the EU (TFEU). Such entities are not eligible to participate in any capacity, including as beneficiaries, affiliated entities, associated partners, subcontractors or recipients of financial support to third parties (if any).
Special rules apply for entities subject to measures adopted on the basis of EU Regulation 2020/2092. Such entities are not eligible to participate in any funded role (beneficiaries, affiliated entities, subcontractors, recipients of financial support to third parties, etc). Currently such measures are in place for Hungarian public interest trusts established under the Hungarian Act IX of 2021 or any entity they maintain (see Council Implementing Decision (EU) 2022/2506, as of 16 December 2022).
Additional information
Topics
Relevance for EU Macro-Region
EUSAIR - EU Strategy for the Adriatic and Ionian Region, EUSALP - EU Strategy for the Alpine Space, EUSBSR - EU Strategy for the Baltic Sea Region, EUSDR - EU Strategy for the Danube Region
UN Sustainable Development Goals (UN-SDGs)
project duration
48 months
Additional Information
Proposals must be complete and contain all the requested information and all required annexes and supporting documents:
- Application Form Part A — contains administrative information about the participants (future coordinator, beneficiaries and affiliated entities) and the summarised budget for the project (to be filled in directly online)
- Application Form Part B — contains the technical description of the project (template to be downloaded from the Portal Submission System, completed, assembled and re-uploaded)
- mandatory annexes and supporting documents (templates to be downloaded from the Portal Submission System, completed, assembled and reuploaded):
- ownership control declarations (including for associated partners and subcontractors)
Proposals are limited to maximum 70 pages (Part B).
Call documents
Call Document DIGITAL-2026-AI-09Call Document DIGITAL-2026-AI-09(666kB)
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